Well, as some of you know, my hair is gone... I'm bald. I wasn't sure how I'd handle this, but in all actuality, it's quite liberating. It is what it is, and I can't do anything about it. The wonderful thing about it is the cheering and support I've had from my circle of friends/family and other cancer patients and survivors. Randy and I were out to dinner last night, and I was approached by a woman who is a cancer survivor and she immediately recognized I was going thru treatment because of my hair (or lack of). She shared her story, and I was warmed by her positive spirit and well wishes. Then at Wal-mart this morning, I ran into a gal with similar hair who is going thru treatment and we shared our stories and well wishes with each other. I feel so loved, blessed, and am humbled by everyone's support and am shocked by how many people are affected by this crazy disease!
Tomorrow starts my last round of chemo and then I am done! I know I'll be chemo sick for a couple weeks following this week, but I am so excited to see the light at the end of the tunnel. I just pray daily that I never have to revisit this disease. It's been a crazy ride, but I survived. Wow... I can't believe it's almost over. I'll have to have PT scans and continue seeing my oncologist this next year, but no more treatments or chemo sickness. Hallelujah!
I'm so looking forward to December and enjoying the Christmas season. I hope everyone has a fabulous Thanksgiving. I know I have a lot to be thankful for and hope everyone struggling with everyday life can find some goodness in the craziness of it all. Love and prayers!
Sunday, November 14, 2010
Thursday, October 21, 2010
October 21rst
Day 4 of round 3 of post surgery chemo... so far so good. I'm usually feeling some side effects by now but am only feeling a bit nauseous and still watching my hair fall out. I'm mortified by this hair thing. I've tried a couple wigs, and I can honestly say, I'm not a wig girl. They just don't do me any justice. I bought a really cute hat that has some bling on it so it's my mainstay. My doctor suggested I cut off what hair I have remaining, but I just can't do it.
Our trip to North Carolina was fantastic. Randy and I stopped on our way to NC in Atlanta to see Sue. That was great. Hadn't seen her in a year and a half. Good things never change. Then we were picked our by dear friends Tom and Kim in Atlanta and drove the rest of the way to Emerald Isle, NC. Lovely, lovely, lovely. We had beautiful weather, ate good food, drank a bit and just enjoyed life. I was sorry to see the trip end so soon. Luckily we are having some lovely fall weather here in KC. Randy is back in NC this week for his brother's promotion ceremony. He was promoted to a 2 Star General. Very exciting stuff.
Hope everyone is doing well. Love you all~
Our trip to North Carolina was fantastic. Randy and I stopped on our way to NC in Atlanta to see Sue. That was great. Hadn't seen her in a year and a half. Good things never change. Then we were picked our by dear friends Tom and Kim in Atlanta and drove the rest of the way to Emerald Isle, NC. Lovely, lovely, lovely. We had beautiful weather, ate good food, drank a bit and just enjoyed life. I was sorry to see the trip end so soon. Luckily we are having some lovely fall weather here in KC. Randy is back in NC this week for his brother's promotion ceremony. He was promoted to a 2 Star General. Very exciting stuff.
Hope everyone is doing well. Love you all~
Tuesday, October 5, 2010
October 5th
Once again, where does the time go? I cannot believe it is already October. Put out some Halloween decorations over the weekend. Soon it will be Thanksgiving and Christmas. I am doing ok. Hanging in there with my post-surgery chemo. This has been much more than I expected. I did so well with the pre-surgery chemo and was anticipating the same. I've been sick quite frequently, extremely tired, and my hair is now falling out. Doctor didn't expect for me to have as much hair loss as I'm having, but I'm definitely losing a lot. I cut off about 10 inches a couple weeks ago thinking it would help it look fuller. Not sure if it helped or not, but now my hair is right above my shoulders. I'm wearing lots of hats. Doc said hair should start coming back in about 6 weeks following my last chemo session. I have two more to go and should be finished right before Thanksgiving. Instead of "All I want for Christmas is my two front teeth", it will be more like, "All I want for Christmas is my hair to grow back".
My mom is doing quite well. She's driving again, and as I can attest to, when you can start driving again, it's a good feeling because you regain some of your freedom. I'm so relieved she made it thru her ordeal without any lasting issues. She still gets tired easily, but with time, I think she'll recover completely.
Chiefs are 3-0. Only undefeated team in the NFL. Go Chiefs! Leaving for North Carolina on Thursday. Flying into Atlanta. Randy and I are meeting Sue (former colleague) for lunch, and then we are meeting some friends in Atlanta and driving onto NC from there. Have someone coming to watch the dogs and I hope all goes well with that. So excited for the weekend. Will be on the beach at least one full day. I'll be wrapped up from head to toe since my skin is so sensitive to the sun because of the chemo, but I'm so looking forward to just sitting under the umbrella/tent and watching the ocean. Randy's class reunion is this weekend and then his brother has his 2 Star General promotion ceremony the following week. Very exciting stuff!
I just heard that a classmate of mine's son was killed in a car wreck. So sad. Don't know any details, but this reminds me how quickly one's life can change. Live, live, live!!!
My mom is doing quite well. She's driving again, and as I can attest to, when you can start driving again, it's a good feeling because you regain some of your freedom. I'm so relieved she made it thru her ordeal without any lasting issues. She still gets tired easily, but with time, I think she'll recover completely.
Chiefs are 3-0. Only undefeated team in the NFL. Go Chiefs! Leaving for North Carolina on Thursday. Flying into Atlanta. Randy and I are meeting Sue (former colleague) for lunch, and then we are meeting some friends in Atlanta and driving onto NC from there. Have someone coming to watch the dogs and I hope all goes well with that. So excited for the weekend. Will be on the beach at least one full day. I'll be wrapped up from head to toe since my skin is so sensitive to the sun because of the chemo, but I'm so looking forward to just sitting under the umbrella/tent and watching the ocean. Randy's class reunion is this weekend and then his brother has his 2 Star General promotion ceremony the following week. Very exciting stuff!
I just heard that a classmate of mine's son was killed in a car wreck. So sad. Don't know any details, but this reminds me how quickly one's life can change. Live, live, live!!!
Monday, September 13, 2010
September 13th
Where does the time go? The week following my chemo was not the best. I pretty much slept the week away while trying to deal with the nausea and mouth and skin issues. Thankfully the side effects have gone away and last week was a pretty good week. I saw my oncologist last week and he's agreed that my side effects were pretty severe so they are going to cut my chemo back by 20%. He also did a blood test to see if I'm missing an enzyme that helps break down the chemo. I'll know more when I start my next round next week. Right now, I'm feeling good so this should be a good week. Hopefully the next go around is better!
My mom is home. She's doing remarkably well considering how she was doing. We went to breakfast yesterday and then to the grocery store. She was beat by the time we got home, but I was so happy to see her up walking and feeling like her normal self. Thank you for all the prayers... they did their job!
My aunt and uncle are coming thru KC today. They are heading south for the winter. They are Winter Texans. Wish I could go. It will be great to see them as always!
Tonight's the Chiefs Home Opener on Monday night football!!! Go Chiefs!
My mom is home. She's doing remarkably well considering how she was doing. We went to breakfast yesterday and then to the grocery store. She was beat by the time we got home, but I was so happy to see her up walking and feeling like her normal self. Thank you for all the prayers... they did their job!
My aunt and uncle are coming thru KC today. They are heading south for the winter. They are Winter Texans. Wish I could go. It will be great to see them as always!
Tonight's the Chiefs Home Opener on Monday night football!!! Go Chiefs!
Tuesday, August 31, 2010
August 31rst
A lot has happened since my last post. My mom is still in the hospital. Her blood work was out of wack the morning they were thinking she might be released. She's had a lot of ups and downs, but fortunately, she keeps rebounding. Yesterday she had a heart issue where both her heart rate and blood pressure shot quite high. Why? Not sure, but no sign of stroke or heart attack. She's still extremely weak, but she has been up walking which is a great sign.
First week of post-surgery chemo. Done. I was thinking I was going to make it thru without any side effects but some nausea, but NO, couldn't be so lucky. My lips started feeling funny Thursday night and then by Friday, my mouth, throat, and skin were completely irritated and fatigue had set in big time. Went to see my chemo doc's nurse practitioner yesterday. I was put on an IV for fluids since I hadn't been drinking much. Liquids/food are difficult to swallow. Plus an IV with some sort of anti-nausea drug. Gotta say, the nausea is better, but it's going to take time to get the mouth, throat, and skin issue back to normal. I haven't done much since Friday except sleep and watch football plus a few movies. Watched "8 Men Out". Great movie. Thanks Gretchen for the suggestion! That is two for two! :-)
I'm feeling a bit bummed as I was feeling SO good, but I know this too shall pass. I keep reminding myself this post-surgery chemo is like insurance. You gotta have it.
First week of post-surgery chemo. Done. I was thinking I was going to make it thru without any side effects but some nausea, but NO, couldn't be so lucky. My lips started feeling funny Thursday night and then by Friday, my mouth, throat, and skin were completely irritated and fatigue had set in big time. Went to see my chemo doc's nurse practitioner yesterday. I was put on an IV for fluids since I hadn't been drinking much. Liquids/food are difficult to swallow. Plus an IV with some sort of anti-nausea drug. Gotta say, the nausea is better, but it's going to take time to get the mouth, throat, and skin issue back to normal. I haven't done much since Friday except sleep and watch football plus a few movies. Watched "8 Men Out". Great movie. Thanks Gretchen for the suggestion! That is two for two! :-)
I'm feeling a bit bummed as I was feeling SO good, but I know this too shall pass. I keep reminding myself this post-surgery chemo is like insurance. You gotta have it.
Wednesday, August 25, 2010
August 25th
Good morning!
Good news... sounds like my mom may be discharged from the hospital this morning. I know my mom would rather go home, but she will be going to Carondelet Assisted Living for anywhere from 10-30 days. As that Dorothy girl from Kansas said, "There's no place like home". My personal thought is Carondelet is for the best. She's still extremely weak and with the continued therapy, hopefully her strength will quickly return. It's amazing what a little time can do when one is recovering.
I started my chemo on Monday. So far, so good. I'm a bit tired, but that's nothing a little sleep can't fix. I'll have chemo today, Thursday and Friday, and then be off for 3 weeks before the next go around. 4 series of this and then I'm done. Had a follow up yesterday with my surgeon. He's quite pleased with everything and discharged me from his care. Yeah! Two doctors down, one to go. Unfortunately, I'll have to see my oncologist off and on for at least a few years for blood work, pt scans, annual colonoscopies (oh joy!) and other tests. Had blood tests on Monday, and my blood levels were "excellent". Yeah!
The heat in KC has broken. It got down in the 50's last night, and today's high is forecasted to be 80. Sounds like we are going to have a beautiful week, but the heat will return over the weekend. So happy to be done with the 100+ heat index days.
All- take care and prayers for all!
Good news... sounds like my mom may be discharged from the hospital this morning. I know my mom would rather go home, but she will be going to Carondelet Assisted Living for anywhere from 10-30 days. As that Dorothy girl from Kansas said, "There's no place like home". My personal thought is Carondelet is for the best. She's still extremely weak and with the continued therapy, hopefully her strength will quickly return. It's amazing what a little time can do when one is recovering.
I started my chemo on Monday. So far, so good. I'm a bit tired, but that's nothing a little sleep can't fix. I'll have chemo today, Thursday and Friday, and then be off for 3 weeks before the next go around. 4 series of this and then I'm done. Had a follow up yesterday with my surgeon. He's quite pleased with everything and discharged me from his care. Yeah! Two doctors down, one to go. Unfortunately, I'll have to see my oncologist off and on for at least a few years for blood work, pt scans, annual colonoscopies (oh joy!) and other tests. Had blood tests on Monday, and my blood levels were "excellent". Yeah!
The heat in KC has broken. It got down in the 50's last night, and today's high is forecasted to be 80. Sounds like we are going to have a beautiful week, but the heat will return over the weekend. So happy to be done with the 100+ heat index days.
All- take care and prayers for all!
Tuesday, August 17, 2010
August 17th
It's official... this is the summer of the hospital. Something I didn't share previously is when I was in the hospital, two of my sister-in-laws were also in the hospital. One for a sudden and severe heart issue that she is lucky to have survived and the other for an emergency gallbladder removal. Well, now my mom is in the hospital. She had been feeling less than great the past week... trouble catching her breath, nausea, dry heaves, some vomiting, fever, etc, etc. Finally on Sunday, I convinced her to go to the doctor on Monday. The plan was I would take her following my chemo session. Well, she called yesterday AM at 730 AM and asked me to take her to the emergency room. Called Randy and then headed to her house. Randy arrived before I did, and they had called 911 before I arrived. The paramedics showed up quickly and both her oxygen level and blood pressure were extremely low. Arrived at ER at about 830 AM. Once there, the docs did a bunch of test. I know my mom was fearful that something was wrong with her heart or lungs. They finally determined that she had a bunch of blood clots in her lungs which was stopping the oxygen from getting into her blood stream. The doctor admitted her to ICU. This AM, the doctor wasn't real thrilled with her response to the meds and her blood pressure was still extremely low so they decided to do surgery to "squash" the clots and put in filters in case more clots form. The filters will prevent any clots from reaching her brain or heart. The procedure went very well and her blood pressure immediately normalized. She's extremely weak and groggy, but from what I am understanding, she will make a full recovery with time and a lot of rest. I know I've asked for a lot of prayers this summer but will you please add my mom to your prayers.
Regarding my chemo, my doctor's office was surprised to see me show up yesterday without my mom because she has been with me for all of my appointments. When I told them my mom was in the hospital, they decided to postpone my treatment for a week. They were afraid that since I'll be receiving a larger daily dosage that I might have some side effects and nausea, and they didn't want me feeling less than great with having to do additional driving to see my mom and for my treatments. I was more than relieved that they suggested this.
As always, take care!! Love you all!
Regarding my chemo, my doctor's office was surprised to see me show up yesterday without my mom because she has been with me for all of my appointments. When I told them my mom was in the hospital, they decided to postpone my treatment for a week. They were afraid that since I'll be receiving a larger daily dosage that I might have some side effects and nausea, and they didn't want me feeling less than great with having to do additional driving to see my mom and for my treatments. I was more than relieved that they suggested this.
As always, take care!! Love you all!
Monday, August 16, 2010
August 16th
Another week has passed. Feeling remarkably well. It's really is amazing what a little time can do. The Kansas City heat has broken. Cool front came in Saturday night. Went to Wal-mart late yesterday afternoon (yes, I know, exciting stuff), and I could feel a cooler breeze coming from the north. I absolutely adore summer and the heat, but I haven't been able to get out or visit the pool daily like normal so I'm actually looking forward to fall.
Post-surgery chemo starts today. This time instead of wearing a pump 24/7, I will actually sit in the infusion room and get an IV. I do this Monday-Friday for about a half hour each day and then will be off for 3 weeks... this will go on for 4 series (16 weeks), then I should be done! Fingers crossed I don't experience many side effects this go around. Since one of the side effects of the chemo is skin and sun sensitivity, I went to the pool yesterday as a final hoorah. The weather was perfect. Mid 80's, low humidity, and sunny!
I am anxious to get back to work. I really miss working and interacting with people!!! Thank God for my family and friends... especially my mom. They've been great at listening to me chatter endlessly. :-) Take care all!
Post-surgery chemo starts today. This time instead of wearing a pump 24/7, I will actually sit in the infusion room and get an IV. I do this Monday-Friday for about a half hour each day and then will be off for 3 weeks... this will go on for 4 series (16 weeks), then I should be done! Fingers crossed I don't experience many side effects this go around. Since one of the side effects of the chemo is skin and sun sensitivity, I went to the pool yesterday as a final hoorah. The weather was perfect. Mid 80's, low humidity, and sunny!
I am anxious to get back to work. I really miss working and interacting with people!!! Thank God for my family and friends... especially my mom. They've been great at listening to me chatter endlessly. :-) Take care all!
Sunday, August 1, 2010
August 1rst
Another week has passed... for someone who isn't doing much, I don't know where the time goes. Overall the week was good. Each day I feel a bit better and am able to do more each day. Had a great day on Friday. My mom and niece came over and we watched movies, made tacos, and made jewelry. I was actually up for the full day. Wow, that's an accomplishment. The weekend has been quiet. Don't know what happened last night, but I didn't sleep a wink. Watched TV all night... Runaway Bride, Larry King, Nancy Grace, Joy Behar, a couple hours of Lockup. At least night time TV is better than daytime TV. Been napping off and on all day. Watched the 40-year old virgin earlier. LOL funny!
My stitches are all starting to dissolve, and my stomach incision is looking better than I thought it would. My tummy is still swollen, but it's almost back to normal. Drove yesterday. First time to drive since June 30th. Felt like I should have had an adult driver with me to supervise. Can't believe it's already August and just cannot believe I missed July. Hope everyone is enjoying their summer and keep in touch!
My stitches are all starting to dissolve, and my stomach incision is looking better than I thought it would. My tummy is still swollen, but it's almost back to normal. Drove yesterday. First time to drive since June 30th. Felt like I should have had an adult driver with me to supervise. Can't believe it's already August and just cannot believe I missed July. Hope everyone is enjoying their summer and keep in touch!
Friday, July 23, 2010
July 23rd
I am feeling SO much better... amazing what a few days can do. Went to the doctor on Tuesday and he said I'm healing beautifully. He also mentioned, his exact words were, "you will feel like a new girl in 4 weeks." Yeah! Doctor gave me some new pain meds and something for anxiety and said to take as needed. Mainly taking one of the pain meds before I go to sleep, and it's helping me sleep. It is so wonderful to wake up after sleeping the night thru and feel rested. I think I was so sleep deprived that it was making me looney. My home nurse stopped by yesterday and she mentioned I looked "great", and I about hugged her.
Besides sleeping better, I'm actually feeling a bit of my stamina returning. Last week, it was all I could do to sit up. Now I'm actually sitting up with out as much pain and am walking more each day. Getting out of bed or getting off the couch was an absolute chore. I felt like a rolly-polly trying to sit up. Now I'm able to get out of the bed or off the couch without much struggle. I know these things sound minor, but we forget how many things we take for granted.
Besides sleeping better, I'm actually feeling a bit of my stamina returning. Last week, it was all I could do to sit up. Now I'm actually sitting up with out as much pain and am walking more each day. Getting out of bed or getting off the couch was an absolute chore. I felt like a rolly-polly trying to sit up. Now I'm able to get out of the bed or off the couch without much struggle. I know these things sound minor, but we forget how many things we take for granted.
Tuesday, July 20, 2010
July 20th
Slept very well last night with the little help of some Tylenol PM. Have had a few more emotional days recently, and I'm soul searching for answers. I am usually extremely stable and optimistic, but I'm currently all over the place. I am so angry this has happened to me. I just don't understand how I can go from being so healthy to two surgeries and bed-riden. Randy and my mom and I discussed this during dinner last night. Heard a couple things that I hadn't heard before. Randy said my surgeon said if this cancer had not been found, I would not have lived to be 50. My mom mentioned that my surgeon said if this second surgery would not have taken place that the cancer would have returned and nothing could be done at that point... just the pain would be slow certain torture and death. I have so many different emotions going thru my head. I hear things like this, and I am grateful. I have so much to be thankful for. I have a strong loving family, a relationship with God, a beautiful, safe home, friends that love me, doggies that love me, etc, etc. I just continue to question why this happened to me, and I need to accept the fact that I could not have done anything to change things.
Wednesday, July 14, 2010
July 14th
After 12 days in the hospital, I am home. Came home Sunday afternoon. The last couple days in the hospital about put me over the edge. I have to thank Teresa again for her words of wisdom saying break downs lead to break thru's. It helped me accept that my moments are ok, and I have to remember that I am not in control. Anyway, it's true, there is no place like home. I am on complete bed rest for 2 weeks followed by two weeks of limited activity. Feeling a bit better each day, but I am still extremely weak and swollen. My mom has been cooking, and it's been a welcomed treat after not eating for 9 or so days followed by the days of soft hospital food.
I had the funniest thing happen to me at the hospital after they gave me some Ambien (sleep aid). I slept soundly for about an hour only to wake up and buzz the nurse and ask the nurse where the Ambien was for my husband, doggies and kitties. The nurse then came to my room and asked me again what I was needing... and I told her that Randy and my dogs and cats needed their Ambien. The third time around, I realized I was sleep talking and woke up. I laughed and laughed and laughed. It felt so good, and I understand the nurses got a good laugh from it too.
As always, I love hearing from everyone! Stay cool!
I had the funniest thing happen to me at the hospital after they gave me some Ambien (sleep aid). I slept soundly for about an hour only to wake up and buzz the nurse and ask the nurse where the Ambien was for my husband, doggies and kitties. The nurse then came to my room and asked me again what I was needing... and I told her that Randy and my dogs and cats needed their Ambien. The third time around, I realized I was sleep talking and woke up. I laughed and laughed and laughed. It felt so good, and I understand the nurses got a good laugh from it too.
As always, I love hearing from everyone! Stay cool!
Friday, July 9, 2010
Jello and juice. Yippee! My bowels are definitely waking up and are making quite a fuss. I guess it's their way of asking what the...
My morning has been terrible. I've decided my hospital bed is really a vessel of torture. I am absolutely exhausted and am having a terrible time trying to sleep. My nurses all agree that I am not getting any decent sleep... just 20 minutes here, 20 minutes there. I'd love to try to sleep for more than an hour. I think my nurse is going to ask my doctor for a sleep aid.
Regarding my morning, I have to remind myself that I am going to have bad days, and it's ok. A bad day doesn't mean I am losing my positive attitude. I hate being cooped up in this hospital and not being able to enjoy the comforts of home. The loss of freedom to do what I want, when I want is a real struggle. I can't try to understand why this is happening... just to try to accept it as best as I can.
My morning has been terrible. I've decided my hospital bed is really a vessel of torture. I am absolutely exhausted and am having a terrible time trying to sleep. My nurses all agree that I am not getting any decent sleep... just 20 minutes here, 20 minutes there. I'd love to try to sleep for more than an hour. I think my nurse is going to ask my doctor for a sleep aid.
Regarding my morning, I have to remind myself that I am going to have bad days, and it's ok. A bad day doesn't mean I am losing my positive attitude. I hate being cooped up in this hospital and not being able to enjoy the comforts of home. The loss of freedom to do what I want, when I want is a real struggle. I can't try to understand why this is happening... just to try to accept it as best as I can.
Wednesday, July 7, 2010
July 7th
I am still not real coherent, but I wanted to give some sort of update even though it's certain to be short and to the point.
Wow... what an experience so far. Surgery went off without a hitch as scheduled Wednesday morning, June 30th. All appeared to have gone extremely well. Pathology was in surgery and said all the tissue was cancer free. When I came out of recovery, I was told that I was on the road to recovery. Friday night, my surgeon stopped by to tell me that they found cancer cells in some of the tissue that has been removed, and I needed another surgery to remove all the remaining tissue. Had second surgery Saturday and am just now feeling somewhat normal. Haven't eaten anything since Monday, June 28th. Can't eat until my bowels to wake up. I am just now beginning to feel hungry. Could be at least a couple more days before bowels are functioning enough to let me start on some soft solids. Sounds like I may be in hospital for another 5-7 days. Am extremely wiped out... will write more tomorrow.
Take care!
Wow... what an experience so far. Surgery went off without a hitch as scheduled Wednesday morning, June 30th. All appeared to have gone extremely well. Pathology was in surgery and said all the tissue was cancer free. When I came out of recovery, I was told that I was on the road to recovery. Friday night, my surgeon stopped by to tell me that they found cancer cells in some of the tissue that has been removed, and I needed another surgery to remove all the remaining tissue. Had second surgery Saturday and am just now feeling somewhat normal. Haven't eaten anything since Monday, June 28th. Can't eat until my bowels to wake up. I am just now beginning to feel hungry. Could be at least a couple more days before bowels are functioning enough to let me start on some soft solids. Sounds like I may be in hospital for another 5-7 days. Am extremely wiped out... will write more tomorrow.
Take care!
Tuesday, June 29, 2010
June 29th
Enjoying a lovely bowel cleanse today... I keep telling myself some people pay big bucks for these sort of treatments at the high-dollar salons. This is what I call pampering at its finest!! :-)
Monday, June 28, 2010
June 28th
Yesterday was quite an emotionally charged day... what it was, I don't know, but I was all over the place. I went to mass with my mom in the AM and cried thru the entire mass. My mom asked me a couple times if I was OK. I was totally OK, but the tears kept coming. I finally decided we were in the weepy pew as I noticed a couple down the row was having issues of their own. The women kept crying and her husband was trying to comfort her. It reminded me that we all have struggles. Following mass, the moms, Randy, Kendra and I all went to an early dinner at Cinzetti's for my birthday. Good as always. When we were leaving, I saw a very young girl, probably 10 years old or so, in an electric wheelchair. That sent me into another crying spell, but it made me think that I really don't have it so bad. I will get thru this and my life will return to normal... I just need to give it time and practice patience.
Saturday, June 26, 2010
Thursday, June 24, 2010
June 24th
Received a call from my surgeon's office yesterday saying I needed a Cardiac Consult/Clearance for Surgery because my EKG came back borderline abnormal, and I cannot have this surgery until I get cleared. They recommended me to a cardiac specialist who's first available appointment was in August. Uh no... not postponing this surgery if at all avoidable. Called my GP, and the scheduler said that they could do this and could get me in tomorrow (Thursday). OK... felt like I was getting somewhere only to discover an hour later that they don't do the consult/clearance, but they do do EKG's for pre-surgery physicals. They finally got me in with a cardiac specialist for tomorrow (Friday). My GP's nurse said a borderline EKG could be caused by a number of things, but I'm hoping it's just stress. Please wish me luck!
Wednesday, June 23, 2010
June 23rd
Tick, tock... a week from today, and I'll be in surgery. I am so incredibly anxious. Wish I could move my surgery date up just to get things going. I hadn't really thought about the surgery much until a couple weeks ago and now it's all I seem to think of. I think part of it is because I am not working and my mind has a lot of free time to wander. I try to put the thought of cancer out of my mind, but I am constantly reminded of it. I was actually reading a Danielle Steele book (fast, easy read) and was completely enjoying it until the antagonist was killed off by cancer. Good grief... didn't see that coming. LOL!
I'm going to get this day going and make it a point to make it a good one. I love the hot summer days, and today is going to be a sizzler. Enjoy and stay cool!
I'm going to get this day going and make it a point to make it a good one. I love the hot summer days, and today is going to be a sizzler. Enjoy and stay cool!
Sunday, June 20, 2010
June 20th
I can't believe that this coming Wednesday will be six weeks since my last chemo and radiation treatments and then my surgery is the following Wednesday!!! Where has the time gone?
I am getting really anxious about this surgery. I was just at Shawnee Mission Medical Center on Friday for some pre-surgery testing. EKG, gave MORE blood, did some x-rays, etc, etc and went over surgery and recovery. The nurse told me the details of the surgery (I am a bit freaked) and to expect to possibly be in the hospital for anywhere from 6 to 10 days... before I'd been told 5 to 7 days so I'm curious to find out how long it will really be. I knew this was pretty major surgery, but I've been "putting it out of my mind" so I didn't have to think about it. It sounds like I am going to be completely out of commission for all of July and most, if not all, of August. Good grief!
I cannot express enough how much I appreciate everyone's prayers and kind words. I recieved a message on Facebook from a grade school/high school friend who's husband had cancer, and she advised me "to stay in the moment at all times". I cannot tell you how right on she is. In reality, if I think about this too much, it's very worrisome and the "what if's" scare me more than you can even imagine. Thankfully, I've been feeling pretty good the last few days which helps my overall well-being. Did a day trip yesterday with the mom's and Randy to Springfield, MO to check out Fantastic Caverns. Fun, fast trip...
Happy Father's Day to all and hope you have a terrific week! Take care!
I am getting really anxious about this surgery. I was just at Shawnee Mission Medical Center on Friday for some pre-surgery testing. EKG, gave MORE blood, did some x-rays, etc, etc and went over surgery and recovery. The nurse told me the details of the surgery (I am a bit freaked) and to expect to possibly be in the hospital for anywhere from 6 to 10 days... before I'd been told 5 to 7 days so I'm curious to find out how long it will really be. I knew this was pretty major surgery, but I've been "putting it out of my mind" so I didn't have to think about it. It sounds like I am going to be completely out of commission for all of July and most, if not all, of August. Good grief!
I cannot express enough how much I appreciate everyone's prayers and kind words. I recieved a message on Facebook from a grade school/high school friend who's husband had cancer, and she advised me "to stay in the moment at all times". I cannot tell you how right on she is. In reality, if I think about this too much, it's very worrisome and the "what if's" scare me more than you can even imagine. Thankfully, I've been feeling pretty good the last few days which helps my overall well-being. Did a day trip yesterday with the mom's and Randy to Springfield, MO to check out Fantastic Caverns. Fun, fast trip...
Happy Father's Day to all and hope you have a terrific week! Take care!
Wednesday, June 16, 2010
June 16th
Good morning!
I have started a blog... I think it might be the best way to keep everyone
posted on my situation.
http://jennylusk.blogspot.com/
Thanks for your concern and prayers. I appreciate everything!
Take care!
I have started a blog... I think it might be the best way to keep everyone
posted on my situation.
http://jennylusk.blogspot.com/
Thanks for your concern and prayers. I appreciate everything!
Take care!
June 15th
I have been up since 4 AM... not sleeping well. I am doing ok, but I'm extremely anxious about the upcoming surgery scheduled for June 30th at Shawnee Mission Medical Center. According to my surgeon, I'll be in the hospital for 5-7 days. I've been off the chemo and radiation for almost a month now and was told to enjoy this period because this is the best I'll probably feel for about 6 weeks following the surgery. This time has been less than blissful... have had a few issues causing some major discomfort, but I am getting thru them. I knew cancer wouln't be fun, but I never imagined all the things that could and would happen. Following the surgery, I'll be laid up for about 6 weeks and will be back on chemo for 4 and a half months. I so wish I could push a fast forward button and get this over.
Went to Dallas for Memorial Day and the Lake of the Ozarks last weekend. Wonderful times with loved friends. Now if we could just stop the rain!
I'll keep you posted on the surgery. Sincerely thanks for all your prayers and words of encouragement. I can feel God's presence, and it is wonderful!
Take care!
Jenny
Went to Dallas for Memorial Day and the Lake of the Ozarks last weekend. Wonderful times with loved friends. Now if we could just stop the rain!
I'll keep you posted on the surgery. Sincerely thanks for all your prayers and words of encouragement. I can feel God's presence, and it is wonderful!
Take care!
Jenny
May 26th
Hello to all!
I am so glad to see the sun shining and the warm weather returning! It's wonderful!
Beginning to feel a bit back to normal. Still do not have a ton of energy or stamina and still taking my daily naps, but I'm beginning to get out and about. I love it! Can't believe this weekend is Memorial Day weekend. Randy and I are Dallas bound for the holiday, and I am so looking forward to spending time with some dear friends!
Things have been rather quiet since my treatments have ended. I am anxious about the surgery scheduled for June 30th and am ready to get it over. Still going to the doctor weekly for blood work, and my numbers are right where they should be.
I appreciate all the prayers. I can honestly say I feel them and know I am wrapped in God's blessings.
Hope everyone has a great holiday weekend. Take care!
jenny
I am so glad to see the sun shining and the warm weather returning! It's wonderful!
Beginning to feel a bit back to normal. Still do not have a ton of energy or stamina and still taking my daily naps, but I'm beginning to get out and about. I love it! Can't believe this weekend is Memorial Day weekend. Randy and I are Dallas bound for the holiday, and I am so looking forward to spending time with some dear friends!
Things have been rather quiet since my treatments have ended. I am anxious about the surgery scheduled for June 30th and am ready to get it over. Still going to the doctor weekly for blood work, and my numbers are right where they should be.
I appreciate all the prayers. I can honestly say I feel them and know I am wrapped in God's blessings.
Hope everyone has a great holiday weekend. Take care!
jenny
May 13th
Radiation and Chemo are over!!! Yippee! I'm still very tired and VERY sore. I hope to be feeling half way normal come next week. I am so ready to get back at it. The daily naps are great, but I miss seeing and talking to people. I saw a commercial the other day about babies reading flash cards. I honestly thought about trying it with my dogs. Now, you tell me, am I bored?
Surgery is scheduled for June 30th. Just found out I'll be in hospital for 5-7 days. WOW!... had no idea I'd be in for that long. I believe I'll be at Shawnee Mission Medical Center. I'll let you know more about this as I know.
Hope all my midwest friends are surviving the crazy weather. Stay safe and love to all!
jenny
Surgery is scheduled for June 30th. Just found out I'll be in hospital for 5-7 days. WOW!... had no idea I'd be in for that long. I believe I'll be at Shawnee Mission Medical Center. I'll let you know more about this as I know.
Hope all my midwest friends are surviving the crazy weather. Stay safe and love to all!
jenny
May 5th
Where, oh where does the time go? I cannot believe it's already May 5th. To anyone out celebrating Cinco de Mayo, I am SO jealous! Cannot wait until I can resume a halfway normal lifestyle! Having cancer is defnitely time consuming. Daily it's doctors, labs, appointments, naps, doctors, labs, appointments, naps, etc, etc. I like the afternoon naps. I think our parents where on to something when we all got daily naps and snacks without it seeming unusual.
I found out for certain that I finish up chemo next Tuesday and radiation on Wednesday. Can't believe I am on the downhill side of this pre-operative chemo and radiation. I felt like the sky opened and a light descended yesterday when I was getting the news from my doctors. Besides the port thing and a few side effects, I have pretty much sailed thru this without extreme difficulty. I crack up because my team is constantly saying I am "sure perky". Following this pre-operative stuff, I have a 6 week resting period before surgery. The reason for this is to let my body get back on track and the cancer cells continue to die for 6 weeks following the last radiation treatment. Fingers crossed the surgery goes off with out a hitch.
Nothing much else going on... just counting down the days. Again, thanks for all your prayers and well wishes.
Take care!
Jenny
I found out for certain that I finish up chemo next Tuesday and radiation on Wednesday. Can't believe I am on the downhill side of this pre-operative chemo and radiation. I felt like the sky opened and a light descended yesterday when I was getting the news from my doctors. Besides the port thing and a few side effects, I have pretty much sailed thru this without extreme difficulty. I crack up because my team is constantly saying I am "sure perky". Following this pre-operative stuff, I have a 6 week resting period before surgery. The reason for this is to let my body get back on track and the cancer cells continue to die for 6 weeks following the last radiation treatment. Fingers crossed the surgery goes off with out a hitch.
Nothing much else going on... just counting down the days. Again, thanks for all your prayers and well wishes.
Take care!
Jenny
April 24th
Hello!
I hope this finds you all doing well!
I apologize for the lack of updates, but the past couple weeks have been something. Started my chemo and radiation two weeks ago this past Thursday. Besides irritated lips and some stomach issues, I had been feeling pretty good until late last week when I started experiencing some pretty major upper body pain. I didn't know if it was muscle fatigue or what. All the doctors agreed that it must have something to do with the chemo, but we just chalked it up to my body adjusting to the chemo. This past week, the pain was getting a bit ridiculous. I was having problems sleeping, breathing and moving around. On Thursday, my chemo doc ordered some tests on my port, and it turns out my port had a hole in it. I was immediately taken off the chemo because instead of all of the chemo going into my bloodstream, some of it was escaping from the catheter into my chest cavity. The chemo was burning my chest tissues, and this is what was causing all the pain. The existing port was removed and a new port was put in on other side of my chest Friday. I'm on furlough from chemo for the weekend and have been doing nothing except sleeping and popping ibuprofen since I got home from the hospital yesterday. I am already feeling some relief from the "chemo chest pain"... thank God! From what I understand, the chances of something like this happening are extremely rare, but why, oh why, couldn't I won this past week's Power Ball if I am going to have rare things happen to me? I guess I have too many teeth... you'll understand what I'm referring to if you've seen a picture of the recent PB winner.
I wanted to thank everyone again for the special thoughts, prayers and everything! I love hearing from everyone!! As before, many of you have asked if you can bring dinner or whatever. Following is a link to a dinner calendar: http://www.brownbearsw.com/freecal/Lusk?KW=Lusk;Op=ShowIt&Date=2010-05-01 Again, do not feel obligated!!!!!
Talk to you all soon and take care!
Jenny
I hope this finds you all doing well!
I apologize for the lack of updates, but the past couple weeks have been something. Started my chemo and radiation two weeks ago this past Thursday. Besides irritated lips and some stomach issues, I had been feeling pretty good until late last week when I started experiencing some pretty major upper body pain. I didn't know if it was muscle fatigue or what. All the doctors agreed that it must have something to do with the chemo, but we just chalked it up to my body adjusting to the chemo. This past week, the pain was getting a bit ridiculous. I was having problems sleeping, breathing and moving around. On Thursday, my chemo doc ordered some tests on my port, and it turns out my port had a hole in it. I was immediately taken off the chemo because instead of all of the chemo going into my bloodstream, some of it was escaping from the catheter into my chest cavity. The chemo was burning my chest tissues, and this is what was causing all the pain. The existing port was removed and a new port was put in on other side of my chest Friday. I'm on furlough from chemo for the weekend and have been doing nothing except sleeping and popping ibuprofen since I got home from the hospital yesterday. I am already feeling some relief from the "chemo chest pain"... thank God! From what I understand, the chances of something like this happening are extremely rare, but why, oh why, couldn't I won this past week's Power Ball if I am going to have rare things happen to me? I guess I have too many teeth... you'll understand what I'm referring to if you've seen a picture of the recent PB winner.
I wanted to thank everyone again for the special thoughts, prayers and everything! I love hearing from everyone!! As before, many of you have asked if you can bring dinner or whatever. Following is a link to a dinner calendar: http://www.brownbearsw.com/freecal/Lusk?KW=Lusk;Op=ShowIt&Date=2010-05-01 Again, do not feel obligated!!!!!
Talk to you all soon and take care!
Jenny
April 11th
Good morning!
What a beautiful weekend! I hope this lovely spring weather lasts!
Started chemo and radiation last week. So far, so good. The only chemo side effect I am feeling is fatigue. Very, very tired. Other than that, practically nothing. Randy's birthday was Friday. Had family over for pizza and many desserts. A very nice evening. Went to the Royals game on Saturday and was absolutely beat by the time we left the game. Sunday morning, went back to bed after I puttered around the house a bit and slept until almost 1:30!
A lot of you are asking what you can do and if I want company to my chemo appointments. Thank you! I luckily only have to go in and "sit" for chemo once a week because I have this pump that provides chemo 24/7. The radiation appointments are super fast... I'm in and out in a matter of 20 minutes. The only side effect I am feeling from the radiation is a warm, flushed feeling that comes on in the afternoon and lasts thru the evening. The warm feeling and fatigue almost makes me feels like I've been at the pool all day. Wish that was the case!
I love your all's emails and suggestions. Special thank you to Carol Crass for letting me know about the Clean House for Chemo Patients program. I'm definitely going to take advantage of this. Also, one of my dear neighbors suggested setting up a dinner schedule just a couple nights a week. If you are interested in this, please email Tiffany Shalberg at tshalberg@yahoo.com. Please do not feel obligated to do anything!!!!... I am just happy to have your support.
I hope everyone has a wonderful day!
Take care!
jenny
What a beautiful weekend! I hope this lovely spring weather lasts!
Started chemo and radiation last week. So far, so good. The only chemo side effect I am feeling is fatigue. Very, very tired. Other than that, practically nothing. Randy's birthday was Friday. Had family over for pizza and many desserts. A very nice evening. Went to the Royals game on Saturday and was absolutely beat by the time we left the game. Sunday morning, went back to bed after I puttered around the house a bit and slept until almost 1:30!
A lot of you are asking what you can do and if I want company to my chemo appointments. Thank you! I luckily only have to go in and "sit" for chemo once a week because I have this pump that provides chemo 24/7. The radiation appointments are super fast... I'm in and out in a matter of 20 minutes. The only side effect I am feeling from the radiation is a warm, flushed feeling that comes on in the afternoon and lasts thru the evening. The warm feeling and fatigue almost makes me feels like I've been at the pool all day. Wish that was the case!
I love your all's emails and suggestions. Special thank you to Carol Crass for letting me know about the Clean House for Chemo Patients program. I'm definitely going to take advantage of this. Also, one of my dear neighbors suggested setting up a dinner schedule just a couple nights a week. If you are interested in this, please email Tiffany Shalberg at tshalberg@yahoo.com. Please do not feel obligated to do anything!!!!... I am just happy to have your support.
I hope everyone has a wonderful day!
Take care!
jenny
April 7th
Good morning!
Hope everyone had a wonderful Easter weekend and is doing well. We had brunch at Cinzetti’s with family and friends. First time there, and I know it won’t be my last. I highly recommend it!
Quick update: Met with my chemo and radiation team again on Monday and then had the chemo port put in Monday afternoon. Out patient surgery. Was a bit sore yesterday, but thankfully, I had some decent pain killers. Slept off and on for most of the day. This morning, I am feeling pretty decent. Going to go out and do a few things I need to get done before I start chemo and radiation tomorrow. Anxious to get the treatments started and see how I feel.
I’ll keep you all posted.
Take care!
Hope everyone had a wonderful Easter weekend and is doing well. We had brunch at Cinzetti’s with family and friends. First time there, and I know it won’t be my last. I highly recommend it!
Quick update: Met with my chemo and radiation team again on Monday and then had the chemo port put in Monday afternoon. Out patient surgery. Was a bit sore yesterday, but thankfully, I had some decent pain killers. Slept off and on for most of the day. This morning, I am feeling pretty decent. Going to go out and do a few things I need to get done before I start chemo and radiation tomorrow. Anxious to get the treatments started and see how I feel.
I’ll keep you all posted.
Take care!
April 1rst
Some of you know… some of you don’t.
I have been diagnosed with Stage 3 Rectal Cancer (so glamorous, huh?… but no cancer is). I just found out last week that I had cancer and am learning more each day.
History: Lost a significant amount of blood out my ass (got a call it like it was) on St. Pat’s Day when returning back to work from lunch. Luckily, I made it to the bathroom. J Called doctor and they had me come in immediately. Had a colonoscopy a week later, last Wednesday. Got back preliminary pathology reports on Thursday indicating invasive cancer. They didn’t know if it was colon cancer or rectal cancer so they sent me in for a CT scan. Had CT scan on Friday. Met w/surgeon Monday AM. He said I have rectal cancer and cancer has spread to my lymph nodes. Does not appear to be any cancer in my liver or lungs which is good. Tumor is about the size of a tennis ball.
Doctors are being very aggressive in their treatment. Plan of action is chemo and radiation for 5 weeks followed by chemo/radiation recovery for 6 weeks. Following that, I will then have then surgery to remove the tumor and lymph nodes followed with another round of chemo. Don’t know how long that round will last.
Met with Radiation doctor Monday afternoon. Met with both Chemo and Radiation doctors yesterday, Wednesday… had a bit of a breakdown. Reality sucks! I’ll have radiation M-F and a chemo pump (which I’ll wear and have with me the entire time) for 5 weeks. Having a second colonoscopy today (wish this was an April Fool’s joke, but it’s not) because surgeon wants to see everything first hand. Following colonoscopy, have to go do lab work for chemo port surgery. Scheduled to have chemo port put in on Monday. They hope to start chemo and radiation on Tuesday.
Yesterday was a long day… at doctors offices for the entire day. I am still exhausted this AM. Lots to digest.
I am actually excited to have a doctor free day tomorrow. I appreciate everyone’s well wishes, support, and prayers, and I’ll keep you posted.
jenny
I have been diagnosed with Stage 3 Rectal Cancer (so glamorous, huh?… but no cancer is). I just found out last week that I had cancer and am learning more each day.
History: Lost a significant amount of blood out my ass (got a call it like it was) on St. Pat’s Day when returning back to work from lunch. Luckily, I made it to the bathroom. J Called doctor and they had me come in immediately. Had a colonoscopy a week later, last Wednesday. Got back preliminary pathology reports on Thursday indicating invasive cancer. They didn’t know if it was colon cancer or rectal cancer so they sent me in for a CT scan. Had CT scan on Friday. Met w/surgeon Monday AM. He said I have rectal cancer and cancer has spread to my lymph nodes. Does not appear to be any cancer in my liver or lungs which is good. Tumor is about the size of a tennis ball.
Doctors are being very aggressive in their treatment. Plan of action is chemo and radiation for 5 weeks followed by chemo/radiation recovery for 6 weeks. Following that, I will then have then surgery to remove the tumor and lymph nodes followed with another round of chemo. Don’t know how long that round will last.
Met with Radiation doctor Monday afternoon. Met with both Chemo and Radiation doctors yesterday, Wednesday… had a bit of a breakdown. Reality sucks! I’ll have radiation M-F and a chemo pump (which I’ll wear and have with me the entire time) for 5 weeks. Having a second colonoscopy today (wish this was an April Fool’s joke, but it’s not) because surgeon wants to see everything first hand. Following colonoscopy, have to go do lab work for chemo port surgery. Scheduled to have chemo port put in on Monday. They hope to start chemo and radiation on Tuesday.
Yesterday was a long day… at doctors offices for the entire day. I am still exhausted this AM. Lots to digest.
I am actually excited to have a doctor free day tomorrow. I appreciate everyone’s well wishes, support, and prayers, and I’ll keep you posted.
jenny
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